Augusto Odone, a World Bank economist who received international attention for his efforts to find a treatment for the rare degenerative brain disease that afflicted his son Lorenzo — a struggle ...

Some victims, like Lorenzo Odone portrayed in the film, get the childhood form which usually kills within just two years. Others get the adult form of the disease, which strikes people in their ...

Lorenzo Odone inspired millions. His father speaks for the first time since his son's death of the toll his suffering brought to those around him It is difficult to pinpoint what moves one most.

Until about the age of seven, Lorenzo Odone was a normal child. After then, strange things began to happen to him: he would have blackouts, memory lapses, and other strange mental phemonenons.

Lorenzo Odone, who doctors had predicted would die in childhood, died one day after his 30th birthday, said his father, Augusto Odone. Lorenzo Odone had come down with aspiration pneumonia ...