Cystic Fibrosis Foundation2d
Cystic Fibrosis Foundation Celebrates New National Volunteer Advocacy Co-Chairs
The Foundation’s National Volunteer Advocacy Committee provides guidance and support to further strengthen and enhance the ...
Cystic Fibrosis Foundation4d
Raising a Child With Cystic Fibrosis
After my son, Julius, was diagnosed with cystic fibrosis, I adjusted to his daily treatments and medical routines, and though I feel guilt and sadness seeing him becoming so familiar with his CF ...
Cystic Fibrosis Foundation11d
Gratitude and Guilt With CF
My evolving relationship with cystic fibrosis brings feelings of guilt and jealousy but also a deep sense of gratitude and understanding.
Cystic Fibrosis Foundation9d
CF Foundation Supports Maryland’s Efforts to Ban Co-pay Accumulators
Dear Chairman Beidle and Members of the Committee on Finance: On behalf of the more than 570 people living with cystic fibrosis in Maryland, we write to express our support for SB 773, which would ...
Cystic Fibrosis Foundation9d
Coalition Urges Congress to Prioritize Robust NIH Funding in FY 2025 Appropriations Bill
Dear Chair Collins, Vice Chair Murray, Chair Cole, and Ranking Member DeLauro, On behalf of the undersigned organizations, we urge you to prioritize robust funding for the National Institutes of ...
Cystic Fibrosis Foundation9d
Coalition Urges Congress to Protect Robust NIH Funding in FY 2025 and FY 2026
Dear Chair Collins, Vice Chair Murray, Chair Cole, and Ranking Member DeLauro, On behalf of the undersigned organizations, we ask you to ensure robust appropriations for NIH in the remainder of fiscal ...
Cystic Fibrosis Foundation9d
CF Foundation Supports Maryland’s Efforts to Ban Co-pay Accumulators
Dear Chairman Pena-Melnyk and Members of the Committee on Health and Government Operations: On behalf of the more than 570 people living with cystic fibrosis in Maryland, we write to express our ...