News

Due to the sudden rupture of the aortic wall, aortic dissection is a life-threatening condition that requires immediate ...
Marfan syndrome is an inherited, or genetic, disease that affects your body's connective tissue, which gives strength, support, and elasticity to tendons, cartilage, heart valves, blood vessels ...
A study by the Institut de Neurociències of the Universitat Autònoma de Barcelona (INc-UAB) reveals that inflammation ...
The European Medicines Agency (EMA) has designated allopurinol as the first orphan drug for the treatment of Marfan syndrome, ...
A study reveals that inflammation associated with Marfan syndrome increases vulnerability to neurological diseases and complications following strokes, as demonstrated in animal models.
Identical twin brothers Pablo and Julio Delcid, 21, underwent matching heart surgeries on the exact same day following their diagnosis of Marfan syndrome. The duo, of Dover, New Jersey ...
Zoe Ridgway, a 32-year-old mum to Sofia, 12, from Aberdare, South Wales, was diagnosed with Marfan syndrome at the age of 12. As a teenager she grew unusually long limbs and her height soared to ...
Nosha's husband, son, and daughter all live with Marfan syndrome. She passionately advocates for her genetically unique family, actively volunteering for the Marfan Foundation, and inspires others ...
Zoe Ridgway, a 32-year-old mum to Sofia, 12, from Aberdare, South Wales, was diagnosed with Marfan syndrome at the age of 12 after doctors initially suspected anorexia due to her “skinny and ...
Milly Marshall-Kirkwood is already setting the standard in seated throwing and has her sights set on the World Para Athletics Championships and the 2028 Los Angeles Paralympics. Her life has been full ...
Marfan syndrome is a genetic condition. It occurs because of a mutation (change) in one of your genes that develops before you’re born. It’s a type of connective tissue disorder, meaning it affects ...